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Home-based Rehabilitation for Children with Mental Disabilities

Integrative Activity

The SSSD held an integrative activity in collaboration with the UNHCR, and within the Home-Based Care Programme at one of the kindergartens in Messiaf, with the aim to raise children’s awareness on the appropriate way to deal with children with specific needs, as well as the importance of integrating them with the rest of the community.

The activity included integrating children with specific needs with other normal children of the local community and IDPs, through diverse activities aimed at enhancing communication and cooperation between them.

Code of Conduct

In response to the women's request to learn about the basics of correcting their children’s wrong behavior, the Syrian Society for Social Development (SSSD), in cooperation with the UNHCR, conducted awareness sessions for the mothers of the Friendship Group children entitled "Code of Conduct", under the Home-Based Rehabilitation Programme at Bayt Alaila Center in Hama, Messiaf.

During the sessions, women were introduced to conduct and how to guide their children’s behaviors. Also, the correct code of conduct and strategies needed to be applied were defined.

At the end of the sessions, the women expressed their joy and gratitude for the valuable information they learned from the sessions, which alerted them to the wrong behaviors they were following with their children.

 

Together We are More Beautiful Event - World Autism Day

An idea that has been alive in our hearts for a long period of time and later came to life as a campaign that included awareness sessions for all age groups, elaborating on autism disorder.
Concluding the campaign, the sun shone brightly on an event held on the occasion of World Autism Awareness Day. “Together we are More Beautiful Event was jointly held by the Syrian Society for Social Development (SSSD) and the United Nations Higher Commission for Refugees (UNHCR).


Al-Fourqa Al-Nouhasiyyeh and SSSD’s Choir launched the celebration and then children with special needs along with their parents, enrolled in SSSD’s programs, friendship groups and Home-Based Rehabilitation Programs, performed different shows (dancing, singing, acting, musical performance). During the shows the organizers conducted some contests and distributed rewards. The event was concluded by a special joyful song. Along with the organizers were the children of the child protection club attached to SSSD.


Here are some comments by the parents of the children:


“When I came back home, my son was so happy, I did not have to give him a tranquilizer, he quickly fell asleep.”
I was so surprised to see my shy child dancing; I find myself speechless to express my happiness; this day is a positive sign that good times are awaiting my child and I.”


“I was so touched watching the theater scene, tears fell down my cheeks remembering how the community used to reject my daughter. Had not have I been at the Syrian Society for Social Development in Aleppo, my daughter would have been living in isolation at home.”


“My daughter came back home and kept talking to her father about the celebration, how she danced and all the things she was involved in. I felt a lot of support today; in the past, I felt I was abandoned.”



“It is the first time I see my son happy and I see someone taking care of him. In the past, he was bullied and was subject to harsh words.”

“I love the way you take care of children, the very young ones and the older ones, even though there was large number of people, but you were always smiling and understanding.”

 

People are no Longer Scared of me.. They like me

Alaa Mahmoud, a 10-year-old female child, suffering from Down syndrome, her 9-member family fled Sbenieh around 5 years ago and moved to Al-Mazarae neighborhood, Jaramana.


One of the mother’s friends who regularly attended sessions and activities at Athar Al-Farashah Community Center, attached to the Syrian Society for Social Development (SSSD), introduced her to the center, particularly the groups targeting people with special needs.


Upon visiting the center, the mother was enrolled in the friendship groups, where she talked about Alaa’s stubbornness and her violence with her siblings. The staff gradually integrated Alaa in the children activities and with close follow up she was later enrolled in the Home-Based Rehabilitation Program (HBRP).


Upon evaluating Alaa’s condition, targets were set and a family plan convenient to the mother was developed and explained, as well as an individual plan. The mother was also provided with an individual target-activity chart.
Eventually hard work and close follow up paid off and Alaa was able to meet most of the targets:
1- Alaa let go of quarrel with her siblings and peers and is constantly working on improving her communication skills with others.
2- She is able to follow the directions of mind and physical games when playing with her peers.
3- She is capable of identifying geometric shapes, drawing squares and circles, and assembling small puzzles (5-10 pieces).
4- She is capable of differentiating numbers and letters and counting (ascending order).
5- She is capable of responding to questions starting with “what if” using the corresponding, proper verbs.
6- Her ability of understanding jokes and funny incidents was developed.
7- Her physical ability was developed: she knows how to play jump rope, how to hop, and how to balance on very tight surfaces.
8- She was trained to observe and appreciate the fascinating world of nature.
9- She now chooses her clothes on her own in response to the weather conditions. She also knows how to change water temperature while washing her hands and taking a shower.
The mother talked about the great relief her family felt due to Alaa’s substantial developments; behavior improvements, awareness development, better interaction at home and in groups.

 

World Autism Awareness Day, Reach Out to the Sky Event

The Syrian Society for Social Development (SSSD) organized an event in Nabd Center, Salkhad celebrating World Autism Awareness Day, in cooperation with the United Nations High Commissioner for Refugees (UNHCR).
The event was organized as a closing ceremony to a series of awareness sessions for adolescents conducted throughout schools, in cooperation with the Directorate of Social Affairs and Labor, As-Suwayda, and the Sports National Union, Salkhad.
The event included: a play shedding light on the most common traits of autistic children and the proper ways of dealing with them; a choir performing several songs about the aspirations of autistic children. Concluding the event, the parents and their special needs children made big kites and drew autism logos on them, and then the children stood up forming a train shape and releasing their kites up in the sky.
Observing the facial expressions of the parents of children with special needs, the team sensed an inclination toward more acceptance, comfort and positive reception.
Number of Beneficiaries: 150 (children and their parents)

World Autism Awareness Day, Reach Out to the Sky Event2 World Autism Awareness Day, Reach Out to the Sky Event3 World Autism Awareness Day, Reach Out to the Sky Event4 World Autism Awareness Day, Reach Out to the Sky Event9

Merging activity - Masyaf

Because of the importance of integrating children with special needs with the normal children in the community center of house of family -Masiaf, the Syrian Society for Social Development, in cooperation with the UNHCR and within the home rehabilitation program, hada merging activity after preparing the children and talk with them about on how to deal with a child with special needs
They had competitions togetherand after that, the children with special needs distributed the balloons tothe children and danced together.

The Journey Begins with a Single Step Etidal’s Story

Two-year old Etidal, a person with Down syndrome, lives in a family of six. The family was displaced from rural Aleppo and lives currentlyin an unfinished house in Jaramana, Daff al-Sakher. When they came to visit the community center to receive some services, the girl was registered, referred to the Rehabilitation Program and integrated into a Friendship Group. In fact, all children were enrolled in age-appropriate activities to obtain services offered at the CC.


When interviewing the mother (with the girl present), the Program and what it can offer was explained to her, especially as it is applied at home mainly and helps the whole family develop some objectives along with the Dawn person.


An evaluation was conducted with both mother and girl, and on the basis of that, a family plan suited to Etidal’s needs was developed. Those needswere explained to the mother and she was provided with appropriatetools and games to achieve the desired objectives.


Through follow-up and practical sessions with both girl and mother, it was established that the girl achieved several objectives:
- She is no longer afraid of leaving her mother at home in her familiar environment with familiar people.
- She no longer crawlsaround the house or move carried around, but walks autonomously and runs to escape or play.
- When talking to her, she nods or shakes her head to affirm or negate, and tries to communicate with the caregiver through sight, waiting for the confirmation of something, and tries to draw attention by applauding or disappearing behind hands.

- She expressesher needs (hunger and thirst) in words, sounds and gestures instead of crying; she names some objects, mimics some simple sounds/words and songs and mentions some names, especially those of her siblings in their absence.
- She is no longer afraid when changing the position of her body from sitting to standing and from lying down to sitting in order to do something.
- She is no longer afraid from hiding to play and loves to play with her siblings, fits with the group, and follows the rules by imitating some of the children’s or siblings’ movements.
- She has become more aware and in control of her surroundings: when seeing sunlight coming from the window she drawsthe curtains; when seeingtrash she throws it in the trash bin; when feeling cold she brings a blanket to feel warm; etc.
- She used to be indifferent to pictures or any drawings she saw. Now, however, when she sees a picture her mother had talked to her about, she points to it with her index requesting from her mother to bring it and talk to her about it again.
- Thanks to the increasing attention given to her and to finding a suitable place where she can play, away from unsafe sources of contamination, the girl’s health improved and she was finally rid of a chronic intestinal infection.


The family’s happiness with this change was immense. It facilitated a lot of things for them and created a relaxed atmosphere within the household. This is why the family continues to help Etidal, cooperating by enjoying playing with her or doing any activity that improves her performance and offers her more autonomy in some simple daily activities.
Work is still going on to plan forward towards subsequent objectives.

His Guardian Angel Youssef’s Story

We met Youssef’s mother after SSSD ORVs had monitored her son. She had come to the community center to get help for him, a 5-year-old Down syndrome boy living with a displaced family from Saqba (Damascus Reef) at one of their relatives’ because they could not afford to rent a house. He was then referred to the Home Rehabilitation Program by the Child Protection case manager.


After talking to the mother during several sessions to explain the Program’s purposes and the way to use it, a direct evaluation of the boy’s condition was conducted and several questions were put to her in order to develop an implementation plan that she could apply with the child at home through a definite routine. The mother was also handed some of the Program tools to ensure her full cooperation and help her achieve the desired objectives.


Then the boy was integrated into a Friendship group and regularly followed up among his peers during group activities. After a specified period of time had elapsed, and reviewing the objectives set before, it turned out that the boy had reached them all:

• The boy is now able to solve his problems by asking his mother for help, while he used to beat other children in previous stages.
• He listens to his mother’s injunctions regarding behavioral control and abides by the rules she sets for him, such as sitting down when someone comes to the house, not messing up with his father’s things, etc.
• He is able to classify tools as carpenter’s tools, kitchen utensils, physician’s instruments, etc.
• He can count up to 3 and has integrated the number concept (he can handle cubes and other objects counting from 1 to 3).
• He can formulate words that express sizes and amounts, such as: big and small, much and little. For example, a large spoon for eating and a little spoon for tea; “I will pour a little tea”; “My big brother”; etc.
• When back home, he talks about things and persons he encountered, especially familiar ones. For example, “Brother played with us with the ball”; he relates the songs he learned and his new experiences to his brothers; etc.
• He can use opposites when speaking about persons and things: “My mate is big,” “That man is tall/short,” and can identify images that illustrate opposite concepts using given tools.
• He can identify and read more than 10 characters, including his name’s (direct application with the boy).
• He can rely on himself in doing some daily tasks without help from adults (washing hands, putting on his clothes, folding clothes, helping in setting the table, etc.).


Working with both mother and child continues in order to set new plans to achieve the subsequent objectives. The dramatic change in Youssef’s life was expressed by the mother thus:
“When I came to the center and learned about the Program and the importance of the plan for my child, the way it works and its objectives became clear to me. I benefited from the plan a lot and experienced immediate results during its application at home. This provided me with effective solutions to several points I observed on Youssef, and this prompted me to make simple tools for my son to serve those objectives. I found myself spontaneously involved in making simple plans to develop some of his skills, in addition to the tools and games that already served the objectives.”


One of the mother’s tools to develop Youssef’s perception and skills is a special notebook in which she puts down all the elements that the boy recognizes, like fruits and animals, with pictures taken from old manuals and captions including the name of each item and some information about it. For instance, “A cow give us milk and says muuu,” etc.


The mother, Youssef’s Guardian Angel, continues to follow up her son’ blooming in the framework of the Rehabilitation Program and seeks to integrate him into the school curriculum.

 

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